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What Is the Center for Studying Disability Policy?

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The Center for Studying Disability Policy was established in 2007 by Mathematica to inform disability policy formation with rigorous, objective research and data collected from the people disability policy aims to serve, supplies the nation's policymakers with the information they need to navigate the transition to 21st-century disability policy. For over two decades, Mathematica has conducted many significant disability studies, including some of the first rigorous evaluations of employment supports for people with severe disabilities and the largest surveys of people with disabilities. More than 30 staff continues this pioneering work today through a wide range of innovative disability research and data collection. Read more.



Highlights

 

New Book Focuses on Counting Working-Age People with Disabilities

Working-age people with disabilities are often overlooked in discussions of the latest statistics on employment, income, poverty, and other measures. A new book, co-edited by David Stapleton, reviews what current data on this population can and cannot tell us, as well as how data quality can be improved to better inform policy. Sign up for the May CSDP forum to hear more.

Policy Forums Shed Light on Disability Research Findings

Photo of capitol A bimonthly lunchtime seminar series provides decision makers and others with an opportunity to hear about the latest disability policy research findings and discuss implications for policy. Proposed topics for the upcoming season, which begins in September, include Money Follows the Person, Demonstration to Maintain Independence and Employment, longitudinal perspective on employment and service use of SSI/DI beneficiaries, and early results from the Youth Transition Demonstration. View presentations from past forums.

 

Recent Publications

About Accessible Documents (*=accessible)

Health Insurance and Health Care Access Before and After SSDI Report

This report uses National Health Interview Survey (NHIS) data linked to data from the Social Security Disability Insurance (SSDI) and Medicare programs to create profiles of SSDI beneficiaries during the three years before and after SSDI entry to illustrate changes in insurance status, health care access, and utilization. SSDI beneficiaries are less likely to be insured, even three years prior to SSDI entry, and utilization and access problems peak right before and after entry.
Report

Counting Working-Age People with Disabilities: What Current Data Tell Us and Options for Improvement

Working-age people with disabilities are often overlooked in discussions of the latest statistics on employment, income, poverty, and other measures. This book reviews what current data on this population can and cannot tell us, as well as how data quality can be improved to better inform policy.
Book

Work Activity and Use of Employment Supports Under the Original Ticket to Work Regulations: Characteristics, Employment, and Sources of Support Among Working-Age SSI and DI Beneficiaries

The latest report from Mathematica’s Ticket to Work program evaluation presents results from the National Beneficiary Survey, administered each year from 2004 through 2006.
* Report

Work Activity and Use of Employment Supports Under the Original Ticket to Work Regulations: Process Evaluation of the Work Incentives Planning and Assistance Program

This report from Mathematica’s Ticket to Work program evaluation looks at the Work Incentives Planning and Assistance (WIPA) program, a grant initiative established by the Social Security Administration (SSA) in 2006.
* Report

Interim Report on the Demonstration to Maintain Independence and Employment

With better access to health care and employment supports, individuals with physical and mental impairments can stay employed, maintain health, and avoid becoming dependent on federal disability benefits. To help American workers with potentially disabling conditions achieve these goals, Congress authorized the Demonstration to Maintain Independence and Employment (DMIE) under the Ticket to Work and Work Incentives Improvement Act of 1999.
Report

Review of International Evidence on the Cost of Disability

Allowance programs are a conceptually appealing way to help people with disabilities and their families pay for goods and services that such individuals often need. This report examines how the international literature on the extra costs of disability could contribute to an assessment of the United Kingdom’s Disability Living Allowance (DLA) and Attendance Allowance (AA) programs.
* Report

Income Security for Workers: A Stressed Support System in Need of Innovation

The current mix of public and private programs to support workers after they experience disability onset provides benefits to millions of workers and former workers. According to an article in the Journal of Disability Policy Studies, despite the large and growing costs of these programs, the inflation-adjusted household incomes of workers with disabilities have been falling for more than two decades, both absolutely and, especially, relative to the incomes of those without disabilities. The aging of the baby boom generation is likely to make matters worse, and the government's fiscal circumstance will make sustaining existing public programs increasingly difficult. Current policy initiatives might eventually improve the disability support system, but they are not likely to ward off adverse consequences of the pending crisis. Policy changes that leverage existing private-sector practices and capabilities might achieve greater success but have received little attention and are far from proven.
Journal Article (subscription required)

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More Publications

Issue Briefs

Is It Time to Establish a National Disability Data System?

There is a growing divergence between demands placed on the system for assisting people with disabilities and the data required to manage this system. A new brief seeks to stimulate discussion about the value of establishing a national disability data system to make better use of existing data and add new data.
*Issue Brief

Transforming Disability Policy for Youth and Young Adults with Disabilities

The transition to adulthood can be difficult for young people with disabilities, and changes in public policy are needed to give them the support they need to find meaningful work, stay employed, and reduce their dependency on federal and state disability benefits. This brief highlights the importance of improving transition policy for youth with disabilities, reviews lessons from recent research, and considers transformative policy changes and why and how such changes might be tested.
* Issue Brief

Employment Support for the Transition to Retirement

Older workers whose employment prospects are cut short can claim reduced Social Security benefits beginning at age 62, the earliest eligibility age. This option provides a floor of protection for workers who are forced by circumstances to retire early, but it also provides benefits to people who may not have a pressing need and might be better off waiting. A leading proposal to extend working years involves increasing the earliest eligibility age for Social Security, but this proposal might inflict hardship on some older workers. The author presents a framework for a new program that could address the harm that increasing the earliest eligibility age might inflict on some older workers.
In Brief (PDF)
In Brief (HTML)
Full Report

Transitioning Medicaid Enrollees from Institutions to the Community: Money Follows the Person

The Money Follows the Person (MFP) demonstration aims to help Medicaid enrollees transition from long-term care institutions to the community. This report from the field, the first in a new series, assesses the scope of the program.
*Report from the Field #1

Costs and Benefits of Eliminating the Medicare Waiting Period for SSDI Beneficiaries

Although Medicare coverage is available to people with disabilities, they must wait for that coverage until 24 months after they become eligible for SSDI. A recent brief discusses the costs and benefits associated with eliminating the Medicare waiting period for new SSDI beneficiaries. The authors estimate that doing so would increase annual Medicare costs by approximately $14 billion, provided that all beneficiaries are enrolled throughout the 24-month period.
* Issue Brief

United Kingdom's Pathways to Work Program

A new brief profiles the U.K.’s Pathways to Work program, which offers employment support and services to applicants for Incapacity Benefits (IB), the country’s largest disability program. Its key elements are a series of compulsory work-focused interviews, as well as a range of optional services and financial supports known as the Choices Package.
* Issue Brief

Work Expectations of Disability Beneficiaries

The inaugural brief in a new series from the Center for Studying Disability Policy highlights the extent to which SSI and SSDI beneficiaries are working or trying to return to work. It also examines their interest in increasing their earnings and self-sufficiency, as well as the challenges they face.
* Issue Brief

Demonstration to Maintain Independence and Employment

The sixth policy brief in a Mathematica series on working with disability looks at the Demonstration to Maintain Independence and Employment, which allows states to provide Medicaid-equivalent or "wrap-around" coverage to supplement existing health insurance for workers with potentially disabling conditions.
PDF
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